Carers Australia

Carer Gateway - 1800 422 737
Text size
Contact Us
  • About Us

    About Us

    Who we are, what we do, and information about our organisation.

    Contact Us
    • Our Organisation
      • Our Mission
      • What We Do
      • Our Member Organisations
      • Our CEO
      • Our History
      • Contact Us
      • Feedback and Complaints
      • Donate
    • Our Governance
      • Constitution
      • Board of Directors
      • Annual Reports & Strategies
  • About Carers

    About Carers

    Key information about carers and how they can be supported.

    Who Is a Carer?
    • About Carers
      • Who Is a Carer?
      • Young Carers
      • Aboriginal & Torres Strait Islander Carers
      • Culturally & Linguistically Diverse Carers
      • Carers In the Workplace
      • Carer Wellbeing Survey
      • Carer Offers
  • Information for Carers

    Information for Carers

    Providing a range of information and supports to carers, such as NDIS, Aged Care and advanced care planning.

    Carer Gateway
    • Carer Discounts and Concessions
    • Digital Health Literacy
    • Disability and NDIS
      • Early Childhood Intervention
      • Mainstream and Community Supports
      • NDIS and Carers
      • Reviewing Your NDIS Plan
      • Other NDIS Supports
    • End of Life Care
      • Advance Care Planning and Advance Care Directives
      • Palliative Care and End-of-Life Care
    • Aged Care
      • My Aged Care
      • Caring For Someone With Dementia
    • Government
      • Carer Gateway
      • Centrelink Payments For Carers
  • Programs & Projects

    Programs & Projects

    Services we provide for carers, including advocacy, advice, and information.

    Young Carers Network
    • Programs
      • Young Carers Network
      • Carer-Inclusive Workplace Initiative
      • Defence and Veteran Carers Network
    • Projects
      • Mindfulness on Demand
      • SANE Forums
      • Women Who Care
    • Medicine Safety
      • Caring for someone living with pain and taking opioids
      • Opioid Medicines Information Pack and Checklist
      • Smoking cessation, nicotine products and e-cigarettes
  • Policy & Advocacy

    Policy & Advocacy

    Advocacy, engagement and research focused on achieving increased recognition and support for carers.

    • Submissions & Positions
      • Submissions
      • Position Statements
      • Carer Recognition Inquiry
      • Federal budget: what it means for carers
      • Federal Election: carers can’t quit
    • Research & Resources
      • Carer Wellbeing Survey
      • Superannuation
      • Caring Costs Us
      • Research & Reports
      • Factsheets
      • Get Involved
      • National Carer Strategy
  • News & Media

    News & Media

    Supporting the people you care for by reducing harm from opioid medicines.

    • News & Articles
      • News Articles
      • Our Newsletter
      • Media Releases
      • Subscribe to the eNewsletter
    • Media Centre
      • Media Contact
      • Secret Life of Carers podcast
      • Videos
  • About Us
    • Our Mission
    • What We Do
    • Our History
    • Our Governance
      • Our Constitution
      • Our Member Organisations
      • Annual Reports & Strategies
      • Board of Directors
    • Our Staff
    • Contact Us
    • Donate
  • About Carers
    • Who Is a Carer?
    • Carers In the Workplace
    • Young Carers
    • Aboriginal & Torres Strait Islander Carers
    • Culturally & Linguistically Diverse Carers
  • Information for Carers
    • Advance Care Planning and Advance Care Directives
    • Palliative care and end-of-life care
    • NDIS and Carers
    • Reviewing Your NDIS Plan
    • Other NDIS Supports
    • Early Childhood Intervention
    • Mainstream and Community Supports
    • My Aged Care
    • Caring For Someone With Dementia
    • Carer Gateway
    • Centrelink Payments For Carers
  • Programs and Projects
    • Young Carers Network
    • Women Who Care
    • Digital Health Literacy
      • My Health Record – Authorised and Nominated Representatives
      • Advance Care Planning and Advance Care Directives
    • Mindfulness on Demand
    • SANE Forums
    • Caring for someone living with pain and taking opioids
    • Opioid Medicines Information Pack and Checklist
    • Smoking cessation, nicotine products and e-cigarettes
  • Policy & Advocacy
    • Submissions
    • Research & Reports
    • Position Statements
    • Carer Recognition Inquiry
    • Federal Budget: What it means for carers
    • Federal Election: Carers can’t quit
    • Carer Wellbeing Survey
    • Caring Costs Us
    • Factsheets
  • News & Media
    • Media Releases
    • News Articles
    • Our Newsletter
    • Subscribe to the eNewsletter
    • Media Contact
    • Secret Life of Carers podcast
    • Videos

Home  | Medicine Safety  | Caring for someone living with pain and taking opioids

Caring for someone living with pain and taking opioids

What’s on this page
Common forms of pain Pain Management Opioid medicines What are Opioids? Important questions & concerns Should people stop taking opioids? Resources and further information More information available from: In the media: Pain management and prescription opioids Q&As Download resources

Everyone who’s experienced pain knows what it is and how it feels. But, everyone’s pain is different. The factors that cause pain are different for each person. Many things influence how someone experiences pain.

There are two types of pain:

  • Short-term (acute) pain – pain that lasts from a few moments to days or weeks. It can range from mild to severe.
  • Long-term (chronic) pain – pain that lasts more than three months after surgery, an injury, or a condition. When the cause is not cancer, it’s called chronic non-cancer pain.

When pain is persistent it’s difficult to deal with. Caring for someone who has high levels of pain, can be upsetting to see. It’s natural to feel helpless at times.

The pain they feel can affect their mood and make them feel sad or anxious. They might not want to spend time with family or friends. Or, they might miss work or other activities. Pain can stop them from eating the right foods and exercising. It can stop them from getting a good night’s sleep.

Common forms of pain

Every person who suffers from pain experiences it differently.

There are common forms of pain, that:

  • can be a symptom of other diseases, or it can be a stand-alone condition
  • may show no evidence of its existence
  • can occur anywhere in the body, or at multiple sites
  • can involve several forms of pain, or just one
  • can be daily, or recurrent (such as migraine).

(Adapted from Pain Australia)

Pain Management

There are many aspects to pain management and different pathways to care. Modern pain care uses a ‘whole person’ approach that considers physical, social and psychological factors. It is the most effective way to reduce pain, improve function and mood and reduce disability.
(Credit – Pain Australia).

More information on managing pain is available on the following websites:

    • Health Direct
    • Pain Australia
    • National Pain Services Directory
    • NPS Medicinewise
    • Chronic Pain Australia
    • Australia Pain Management Association
    • Palliative Care Australia 

Opioid medicines

Some medicines can play a role within this holistic plan, such as paracetamol and non-steroidal anti-inflammatory medicines.

Sometimes, if an individual has tried other treatments without success, their doctor might prescribe opioid medications. However, opioids play a limited role in the treatment of chronic non-cancer pain and can come with a risk of harm and can be addictive if used long-term.

There are many types of opioids with different names and different brands.

Most people don’t realise that strong pain medicines contain opioids. While the doctor or pharmacist will usually explain that the prescribed pain medicine contains opioids, research has found that many people are taking opioids without realising.

What are Opioids?

Opioids are medicines taken to help reduce pain.

They slow down the nerve signals between the brain and the body. This can reduce feelings of pain. But it can also cause side-effects, ranging from constipation to dangerous slowing down of a person’s breathing.

Opioids can also increase hormone levels in the brain (dopamine) that produce feelings of pleasure and pain relief.

(Adapted from NPS Medicinewise)

Opioids are strong pain medications. When lower strength (weaker) pain medications don’t work, opioids are often used. They can help with short-term (acute) pain – like a broken bone or after surgery. They can also help manage pain during a serious illness like cancer.

Opioids are also used to reduce long-term (chronic) pain, such as headaches, back pain, or arthritis. While pain management is important, opioids have a limited role in chronic pain because of a lack of evidence for their long-term benefit.

In a recent survey, over half of participants were taking opioids to treat long-term pain (2020).

 

Important questions & concerns

How do you know if pain medicines are opioids?

The easiest way to find out if pain medicines are opioids is by asking the GP or pharmacist.

Opioids are known by different names so it’s hard to tell by looking at the packet.

The Health Direct website provides details on the ingredients. For example, codeine is one of the weaker opioids while fentanyl and buprenorphine are much more powerful.

Weaker opioids are usually taken as tablets.

Stronger ones can be taken in a range of ways, a few are listed below:

  • Sachets
  • Nasal spray
  • Liquid or syrup
  • Patches for the skin
  • Tablets held next to the gum
  • Quick-acting tablets and capsules
  • Slow-release tablets and capsules
  • Injections (either into the vein or a muscle).

You may not know if the person you care for is taking opioid medicines. It’s helpful to find out so you can support your loved ones to take their medication safely.

Learn more about how to find out if the person you’re caring for is taking opioid medicines.

 

Taking opioids safely

Opioids are generally prescribed with information about safe and effective use. The health professional will only prescribe them when they fully understand the patient, their context, and health condition.

Some people can get good pain relief with opioids in the long term if the dose is kept low and they’re only used from time to time.

Patients with cancer or end-of-life care

Opioids are safe if taken as prescribed. They can be effective to control moderate to severe pain, for example, when someone is in pain during cancer treatment. Or, to help someone live their life as fully and as comfortable as possible when living with a terminal illness (Palliative care).

Managing pain

If you or someone you care for has been prescribed opioids, always ask the doctor or pharmacist for information and advice on how and when to take them. Less than 1 in 5 people using opioids take them in a safe and effective way.

Find out more about how can you support the person you’re caring for with taking their opioid medicines.

If you’re worried that the person you’re caring for is using their opioid medicines unsafely – find out what you can do to help.

The person you care for may want to reduce how many opioids they take. There are many ways to relieve pain that don’t involve using opioids.

You can learn about other ways to reduce pain instead of opioids, further below.

Do opioids have side-effects and risks?

All medicines have possible side-effects. Opioids are no different. The stronger the medication, the worse the side-effects.  The most common ones are:

  • feeling sick
  • constipation
  • tiredness
  • breathing problems – heart rate can slow down to dangerous levels
  • increased pain.

Opioids can be addictive

Your body gets used to opioids if taken over a long time. You’d need to take more and more to get the same pain relief you first experienced. Taking higher doses can cause other problems:

  • dependence
  • tolerance
  • addiction.
Getting support

Someone you care for might feel conflicted. They might want to stop taking opioids if they’re having side-effects, but they might worry that the pain will come back if they stop.

As a carer, you might find it helpful to encourage the one you care for to speak to their health care team who can offer information and advice.  Think about what you’d like to know and write a list of questions to discuss with your GP.

Things to think about…
We understand how hard it can be to stop the medication when it seems like it’s working. Remember – it could also be making things worse in the long run.
If someone you care for has been using pain medicines for a long time, talk to the doctor about the best way to come off them.
Reducing opioid medication should be done slowly otherwise it can cause withdrawal symptoms, like diarrhoea, muscle pains, feeling anxious, sick, or tired.
Bringing the dose down slowly also gives the perfect opportunity to try other ways to cut down pain when opioid free.

Find other ways to support the person you care for.

Listed below are a few ideas to reduce pain without opioids. If you’re caring for someone who needs help to reduce the opioids they’re taking, call your GP today.

Other ways to reduce pain

There are ways to support the person you’re caring for if they’re in pain. Find out more here.

If you or someone you care for is taking opioid pain medication and keen to try something different – there are other options.

The Australian Health Direct website has plenty of suggestions.

  • Over-the-counter medicines
    • Paracetamol
    • Ibuprofen
  • Non-drug options:
    • Exercise
    • Massages
    • Counselling
    • Acupuncture
    • Meditation or relaxation techniques
  • Other therapies:
    • Steroid injections or nerve blockers
    • Radio waves (also known as Radiofrequency ablation –
      Using electric current radio waves to get to the nerve)
    • Nerve stimulation (also known as neuromodulation)
    • Medical marijuana

New solutions are being developed, tried, and tested all the time.

Should people stop taking opioids?

It’s important to balance the benefits and potential harms of using opioids.

Opioids reduce pain. But taking too many opioid medications can cause harm.

Opioids are effective in reducing short-term, non-cancer pain and pain associated with cancer. Because they relieve pain, it can improve other aspects of life too, for example, going to work or activities, and sleeping better.

The benefits of opioids often become less over time (this is known as tolerance). This can mean that the person taking the opioids will want more to get the same pain reduction. This is when there is a much higher risk of side effects.

The Australian Government are keen to protect the health of the public and have introduced new requirements to get opioid medicines. Find out more here.

The Australian Department of Health is bringing in the new requirements to cut down on opioid use:

  • Smaller opioid pack sizes
  • Information and clear warnings about potential harm
  • Tightening the conditions to get prescriptions for opioids.

Resources and further information

  • Checklist: Are you a carer for someone living with pain? Do you want to learn more about their opioid pain medication?
  • Factsheet 1: How do I know if the person I’m caring for is taking opioid medicines?
  • Factsheet 2: How can I support the person I’m caring for with taking their opioid medicines?
  • Factsheet 3: How can I identify if a person I’m caring for is not using their opioid medicines safely?
  • Factsheet 4: Will the person I’m caring for still have access to opioid medicines?
  • Factsheet 5: How can I help someone living with pain?

More information available from:

  • Health Direct
  • Pain Australia
  • NPS Medicinewise
    Chronic Pain Australia
  • Australia Pain Management Association
  • Asking Painful Questions video series

In the media:

Carers Australia has written the following articles to help medical professionals support carers in pain management:

  • Australian Journal of Pharmacy – ‘Engage with carers of patients requiring opioids‘
  • ‘GPs urged to educate carers on opioids‘

 

Did you know…

Opioids are good to reduce short-term extreme pain or pain at the end of life. But there’s little evidence to show they work to reduce long-term pain.

 

Call your GP today if you care for someone who’s ready to quit opioids.

Pain management and prescription opioids Q&As

Download resources

Factsheet
Information pack – Opioids checklist and factsheets

7 May 2021 – 1.72 MB

Download 
What’s on this page
Common forms of pain Pain Management Opioid medicines What are Opioids? Important questions & concerns Should people stop taking opioids? Resources and further information More information available from: In the media: Pain management and prescription opioids Q&As Download resources
Related topics
Medicines Safety Caring for someone living with pain and taking opioids Smoking cessation, nicotine products and e-cigarettes Factsheet 1: How do I know if the person I’m caring for is taking opioid medicines? Factsheet 2: How can I support the person I’m caring for with taking their opioid medicines? Factsheet 3: How can I identify if a person I’m caring for is not using their opioid medicine safely, and what can I do to help? Factsheet 4: Will the person I’m caring for still have access to opioid medicines? Factsheet 5: How can I help someone living with pain? Checklist – Are you a carer for someone living with pain? Do you want to learn more about their opioid pain medication?
Contact Us

[email protected]

Unit 1A, 11 McKay Lane, Turner ACT 2612

Registered Charity
Subscribe to our fortnightly newsletter
  • This field is hidden when viewing the form
  • This field is for validation purposes and should be left unchanged.
Aboriginal, Torres Strait Islander and Pride flags

Carers Australia acknowledges Aboriginal and Torres Strait Islander peoples and communities as the traditional custodians of the land we work on and pay our respects to elders past and present. As an inclusive organisation we celebrate people of all backgrounds, genders, cultures, and abilities.

Disclaimer
Privacy Policy and Terms of Use
Sitemap
Staff Login
© Copyright 2025 Carers Australia Limited - ABN 12231938308
Site by Coordinate

Your Story is Important to Us

  • This field is for validation purposes and should be left unchanged.
Close