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Home  | Get Involved

Get Involved

What’s on this page
Open opportunities

Open opportunities

Surveys, consultations and representative roles – your voice makes a difference!

By speaking up about your experiences, you can inform decision making and service design, and create positive change for you, other carers and the whole community.

Carers Australia invite you to have your say in the following open opportunities. If you wish to raise a specific issue, you can email the team by clicking here.

Calling all South Asian carers! Share your insights on dementia. Calling all South Asian carers! Share your insights on dementia.

Our team at La Trobe University, in collaboration with Dementia Australia, is conducting a cross-sectional study to better understand dementia awareness among South Asians living across Australia.

We want to hear what you know about dementia and your experiences with care. Your insights can truly make a difference

chemist Should a drug used to treat Alzheimer's be subsidised?

A drug called donanemab is being considered by the Pharmaceutical Benefits Advisory Committee (PBAC) for the medicines it will consider reimbursing at its meeting in July 2025.

The public consultation period invites input from patients, carers, professional societies, and consumer groups to provide the PBAC with insights while deciding whether to provide reimbursement.

Have your say by clicking through an online survey.

aged care Are you a carer or a family member of someone who lives in residential aged care?

Would you like to be part of our research to improve the quality of care with a focus of infection prevention and control?

If YES, you may be interested in being part of our Consumer and Community Group.

We aim to develop and assess a program for Infection Prevention and Control nurses who work in residential aged care across Australia. We hope the program will lead to better quality of care and health for people living in residential aged care.

What’s involved?

The Consumer and Community Group will

  • offer advice to the researchers based on their experience of residential aged care.
  • meet (online via Teams or Zoom) every 3-6 months or as required to discuss project plans.

Reimbursement

You will be reimbursed for out-of-pocket costs and offered payments that reflect the time commitment involved in project activities.

Please contact Dr Jo Tropea at [email protected] for more information or to express your interest here.

What are your views on Voluntary Assisted Dying? What are your views on Voluntary Assisted Dying?

What are your views on voluntary assisted dying in Australia? Go Gentle is seeking responses to a survey now at gogentleaustralia.org.au/vadsurvey

Do you care for someone with disability due to road trauma, and use health services in Adelaide? Do you care for someone with disability due to road trauma, and use health services in Adelaide?

People with disability due to serious road trauma access a range of primary health and community care services to support their recovery and ongoing health. However, these services can be difficult to navigate, and are often poorly connected. We are conducting research to address this challenge, and will develop recommendations for improved integrated and connected services within Adelaide.

We need your input to help us achieve this goal. We want to interview people who use primary and community care services (clients and carers/family) and the clinical service providers (clinicians, service providers and care managers).

You will receive gift cards for participating – $75 for an interview and $150 to attend a co-design workshop.

For more information, please contact Dr Heather Block on [email protected] or phone 0473 845 999.

Lived experience roundtables for carers of people with disability Lived experience roundtables for carers of people with disability

The National Workforce Collaboration are holding a series of Roundtables to discuss:

  • What a career path would look like for support workers
  • What entry level through to senior positions might entail in terms of responsibilities, qualifications and pay
  • What other barriers currently exist and how these can be rectified (licences, checks and clearances, casualisation of the workforce)
  • What skills and qualifications should be included in training to meet the needs and expectations of Australians living with disability
  • How these training offerings align with career progression and professional development opportunities and
  • How people with disability can be directly involved.

If you would like to join the roundtable in Perth on Wed 28 May 2025 10am-2pm or in Adelaide on Monday 2 June 2025 10am-2pm please email Sheryl Boniface at [email protected]

Take a survey to help researchers understand how carers look for information on palliative care Take a survey to help researchers understand how carers look for information on palliative care
CareSearch provides online palliative care information and resources to health professionals and to patients, carers and families as providing information for the general community. We are currently inviting members of the public to complete an online survey
The survey only takes a few minutes and covers how you search for information online, and your thoughts on palliative care.
The survey will be run between 07/05/2025 and 04/07/2025.
anticoagulants Lower your risk of stroke with the Anticoagulants Care Plan
The Anticoagulants Care Plan is about helping you lower your risk of stroke and stay well if you have atrial fibrillation.
You can use it to keep track of your medicine and write down notes or other information when talking to your health professional.
Download at: https://qum.hcca.org.au/resources/anticoagulants-care-plan/
anti depressants Would you like to take part in a video about the safe use of antidepressants?

We are looking to recruit people who would be willing to share some of their personal experiences as consumers or carers. Discussion areas and questions asked in the video could include:

  • what was prescribed when it was prescribed?
  • what kind of effect did the medicine have, did it help?
  • if side-effects were experienced, what were they, how did they impact?
  • how easy/difficult was it to stop taking the medicine?

Recruitment criteria:

We’d love to hear from anyone who is based in Sydney, who meets the following criteria:

  • a consumer aged 65yrs+, current or previous lived experience of taking antidepressants for 6 months or more, or
  • a carer aged 18yrs+, who has cared for a consumer aged 65yrs+, with current or previous lived experience of taking antidepressants for 6 months or more.

 Filming details:

  • Filming will take place in Sydney in late May 2025
  • It will involve 2–3 hours of your time on one day
  • Participants will receive a gift voucher as a thank you

If this sounds like you and you’re interested in taking part, visit the HCCA Quality Use of Medicines website for more information, or contact Nadia Owuor at [email protected]

nutrition education study Looking for adults aged 65 and older to share their experiences using an online nutrition education resource

We are currently looking for adults aged 65 years and above to share their experiences in using an online nutrition educational resource for frailty.

 What our study involves

  • Assessing a nutrition educational website for frailty over a 4 week period
  • Completing 2 online questionnaires
  • One telephone/online interview

What’s in it for you

  • Unlimited access to an online educational resource for the prevention and management of frailty
  • Enhanced knowldege and skills to optimise your nutrition

👉 How to register: contact our research team at [email protected]  

C-Stam: We are developing a new tool to help GPs and clinicians understand how memory problems affect everyday tasks like shopping or managing finances. This tool will allow them to offer more tailored care and support, helping people maintain their independence. Help improve care and support for those experiencing memory changes

Are you aged 60 or older, living in Sydney, and are you or someone you care for experiencing memory problems?

Help scientists and researchers develop a new tool to help GPs and clinicians understand how memory problems affect everyday tasks like shopping or managing finances. This tool will allow them to offer more tailored care and support, and help people maintain independence.

 What’s involved?

  • Telephone screening
  • Questionnaires (online or paper)
  • 2x in-person assessments
  • A telephone screening and questionnaire to be completed by a person who knows you well

Compensation

  • You will receive a $50 gift voucher for participating in the study, and reimbursed for any travel or parking expenses. Your informant will receive a $25 gift voucher.

👉 Find out more!

youth mental health Understanding how young people use digital platforms for mental health

About the study
Researchers from Western Sydney University and De La Salle University will conduct interviews and focus groups with young people.

Requirements
* 15 to 30 years old
* Australian
* Use the internet to support your mental health and wellbeing

Participation is voluntary, confidential, and no identifying information about you will be shared n the findings of the study.

Participants will receive a $35 voucher for each interview or focus group they attend.

To get started, visit this website.

Australian Federation of Disability Organisations PAID opportunity for carers to inform lived-experience NDIS review

In response to the findings of the Disability Royal Commission and the Independent Review of the National Disability Insurance Scheme (NDIS), the Australian Government – the Department of Social Services – is writing a Disability Support Quality and Safeguarding Framework and the Disability Support Ecosystem Safeguarding Strategy. These are to make sure all people with disability get good support and are safe.

  • What is important to improve quality and safeguarding
  • What outcomes – or changes – are important for people with disability
  • What it would look like and how they will know if these outcomes were achieved.

We’re looking for people who have lived experience with disability and their families and carers.

Lived experience is everything you have been through and felt in your life. It’s your personal story, shaped by what you’ve seen, heard, and experienced. It informs how you see the world.

We are looking for people with disability to work with our team on the project. We are also looking to recruit people with disability and their families and carers from a small number of other disability organisations. This will mean we have a diverse lived experience team.

You don’t need to have particular skills for this role. You just need to:

  • Be interested in quality and safeguarding
  • Be able to work with our team – by email and online meetings.

You will be paid for your time!

If this sounds like something you are interested in, you can apply for the role by clicking here.

If you have any questions or would like to talk more about the role, please email Layal Hanna at [email protected].

Participate in a Research Project on Digital Health! Young carers who use digital tech to support their mental health invited to join paid study

Participate in a research project on Digital Health

Researchers from Western Sydney University and De La Salle University are talking to young carers about how they use digital platforms and technologies to stay mentally well. Share your story and help us understand what works best for you!

You are eligible to participate if you are: 15-30 years old, an Australian carer, and use the internet to support your mental health and wellbeing.

Sign up to join an interview or focus group here: https://bit.ly/yesparticipating

Listen to young carers and young people with disability Listen to young carers and young people with disability!

Participate in a research project about how young people with disability and young carers define good listening, and whether they feel listened to by the organisations and services in their lives!

The project is called Listening Together, and more information is available on their project website.

Listening Together invites young people with disability and young carers to take part in the research by completing one of two online surveys . You’re eligible if you are 15 to 29 years old, live in Australia and identify as a person with disability or a carer.

Please visit listening-together.com/the-surveys, and thank you in advance!

Australian veterans Understanding and improving responses to suicidality for Veterans

The University of Queensland is seeking Aboriginal and/or Torres Strait Islander representatives, who are ex-serving ADF members with experience of suicidality (either their own or others) or who have experience having cared for an ex-serving ADF member with a history of suicidality.

Consultations are held online and are an hour in length. There are also in-person meetings in Brisbane, if you are available.

Participation is paid.

For more visit this DVASUIC Google site.

anticoagulant Have you been prescribed blood thinning medication? Or are you caring for someone who has?

Details:
The Health Care Consumers’ Association (HCCA), in partnership with Sydney Health Literacy Lab, is researching how we can help people who are prescribed anticoagulant tablets (blood thinning medication) for atrial fibrillation (irregular heartbeat). Your experiences and opinions could make a difference for others.

Who can participate:
Anyone who is based in Australia, over 18 years of age, an adult prescribed anticoagulants tablets for atrial fibrillation or a carer of someone prescribed anticoagulant tablets for atrial fibrillation

To sign up:

  • Fill in your details here: register for anticoagulants consumer interviews, or
  • Call HCCA on (02) 6230 7800

Participants will receive a gift voucher in recognition of their valuable time and contribution.

Sign the petition to add superannuation to the Carer Payment Sign the petition to add superannuation to the Carer Payment

Details:
Sign the petition and help us guarantee super for Australia’s unpaid carers.

Requested by:
Carers Australia and Are Media

Closing date:
Not specified

Find out more:
Click here

What’s on this page
Open opportunities
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