PC4 is seeking 1-2 people with lived experience of cancer who currently live or work in regional, rural or remote areas to join. The successful applicants will advise on survivorship and palliative care projects as well as general PC4 business. You can learn more about the PC4 CAG here.

Expressions of interest close 10 March 2025.

Evohealth are developing a report examining the social and economic burden of COPD in Australia, including on people with COPD, carers, households and the health system. To inform the carer and patient burden analysis, they are looking to conduct short interviews with 2-3 carers who have lived experience of caring for someone with COPD.

The interviews:

• No more than 30 minutes, held via Teams/Zoom/phone call, over the next 2-3 weeks.
• Facilitated by the Evohealth project manager (Maddie Wilson) and another team member for notetaking.
• Will follow an interview guide, which will be provided ahead of time to confirmed participants. The questions are designed to be open-ended to collect insights and experiences, and participants are welcome to advise if there are any they would prefer not to answer.

Evohealth are also happy to accept written submissions in response to the interview questions.

To express your interest:

Please email Maddie Wilson via [email protected] with your name and phone number. Please use the subject title: COPD Carer Interview.

We are currently looking for adults aged 65 years and above to share their experiences in using an online nutrition educational resource for frailty.

 What our study involves

• Assessing a nutrition educational website for frailty over a 4 week period
• Completing 2 online questionnaires
• One telephone/online interview

What’s in it for you

• Unlimited access to an online educational resource for the prevention and management of frailty
• Enhanced knowldege and skills to optimise your nutrition

👉 How to register: contact our research team at [email protected]  

Are you aged 60 or older, living in Sydney, and are you or someone you care for experiencing memory problems?

Help scientists and researchers develop a new tool to help GPs and clinicians understand how memory problems affect everyday tasks like shopping or managing finances. This tool will allow them to offer more tailored care and support, and help people maintain independence.

 What’s involved?

• Telephone screening
• Questionnaires (online or paper)
• 2x in-person assessments
• A telephone screening and questionnaire to be completed by a person who knows you well

Compensation

• You will receive a $50 gift voucher for participating in the study, and reimbursed for any travel or parking expenses. Your informant will receive a $25 gift voucher.

👉 Find out more!

About the study
Researchers from Western Sydney University and De La Salle University will conduct interviews and focus groups with young people.

Requirements
* 15 to 30 years old
* Australian
* Use the internet to support your mental health and wellbeing

Participation is voluntary, confidential, and no identifying information about you will be shared n the findings of the study.

Participants will receive a $35 voucher for each interview or focus group they attend.

To get started, visit this website.

Participate in a national focus group & receive a $50 Woolworths voucher!

What would happen to the person you care for if you were to fall ill?

We value your experiences and invite you to participate in a nationwide focus group to help us better understand and support carers like you.

As a thank you, the first 15 respondents will receive a $50 Woolworths voucher.

 Why Participate?

Your feedback will help shape the development of the Critical Info Platform – a simple system designed to help you get your paperwork sorted for when your information becomes critical. Whether it’s for emergencies, estate planning, or simply making life easier for those you care for, this platform aims to give you peace of mind.

Key Details:

• Eligibility: Open to carers across Australia.
• Incentive: $50 Woolworths voucher for the first 15 participants who complete the EOI form to participate.
• How to Participate: Read the Expression of Interest document and complete your details to participate.
• Deadline: First-come, first-served – offer limited to the first 15 eligible Focus Group participants.

👉 Complete your Expression of Interest today!

Your input will help us create a tool that supports carers like you – ensuring your critical information is organised and accessible when you need it most.

This offer is genuine and limited to the first 15 eligible participants. Beware of scams – for more information, visit Scamwatch.

In response to the findings of the Disability Royal Commission and the Independent Review of the National Disability Insurance Scheme (NDIS), the Australian Government – the Department of Social Services – is writing a Disability Support Quality and Safeguarding Framework and the Disability Support Ecosystem Safeguarding Strategy. These are to make sure all people with disability get good support and are safe.

• What is important to improve quality and safeguarding
• What outcomes – or changes – are important for people with disability
• What it would look like and how they will know if these outcomes were achieved.

We’re looking for people who have lived experience with disability and their families and carers.

Lived experience is everything you have been through and felt in your life. It’s your personal story, shaped by what you’ve seen, heard, and experienced. It informs how you see the world.

We are looking for people with disability to work with our team on the project. We are also looking to recruit people with disability and their families and carers from a small number of other disability organisations. This will mean we have a diverse lived experience team.

You don’t need to have particular skills for this role. You just need to:

• Be interested in quality and safeguarding
• Be able to work with our team – by email and online meetings.

You will be paid for your time!

Tell us if you want to participate

If this sounds like something you are interested in, you can apply for the role by clicking here.

If you have any questions or would like to talk more about the role, please email Layal Hanna at [email protected].

A research team at Monash University is looking to speak with carers of Traumatic Brain Injury patients.

The survey can be administered over the phone, on Zoom, or completed online. All information will be kept confidential.

For more information, and to apply, follow this link.

Elder Abuse Action Australia (EAAA) is excited to launch a new podcast series to amplify lived and living experiences and raise awareness of elder abuse. The ‘Breaking the Silence’ podcast will give a voice to those whose stories are so often hidden from view.

Individuals are invited to share their stories to help reduce stigma and advocate for real change.

While we would prefer to hear from the older person involved, we would also be interested in hearing from carers.

How to take part

If you or someone you know has a story to share, email EAAA with:

• Your name and contact details
• Where in Australia you’re located
• A summary of the story you’d like to share

A limited number of stories will be featured in this pilot program and submissions close on 28 February.

This will be an audio-only podcast. Participants may remain anonymous and trauma-informed support will be available.

Are you living with mental ill-health and/or caring for someone with mental ill-health? Please contribute to our project – creating actions for what matters to 16-25-year-olds and co-design of the national roadmap for mental health research translation through co-design sessions.

Link to sign up: https://go.unimelb.edu.au/hzk8

These sessions aim to help further our understanding of what matters most to young people in mental health research and what research and translation efforts should be directed towards.

Participate in a research project on Digital Health

Researchers from Western Sydney University and De La Salle University are talking to young carers about how they use digital platforms and technologies to stay mentally well. Share your story and help us understand what works best for you!

You are eligible to participate if you are: 15-30 years old, an Australian carer, and use the internet to support your mental health and wellbeing.

Sign up to join an interview or focus group here: https://bit.ly/yesparticipating

Our friends at Children and Young People with Disability Australia (CYDA) want your help advocating for a better and more inclusive education system.

You can share your insights by taking a National Education Survey today.

Link for young people: https://tinyurl.com/2fzch22f

Link for carers: https://tinyurl.com/y8es2jw2

🗓️ Survey closes end of February 2025.

Participate in a research project about how young people with disability and young carers define good listening, and whether they feel listened to by the organisations and services in their lives!

The project is called Listening Together, and more information is available on their project website.

Listening Together invites young people with disability and young carers to take part in the research by completing one of two online surveys . You’re eligible if you are 15 to 29 years old, live in Australia and identify as a person with disability or a carer.

Please visit listening-together.com/the-surveys, and thank you in advance!

Are you a parent or carer of a teenager? Positive Choices need your feedback to help improve their website. Tell them what resources you find most useful, what could be improved, and what you want to see more of on Positive Choices.

Positive Choices (positivechoices.org.au) are looking for parents of teenagers to complete an online survey and provide input on their online evidence-based Australian drug education portal. Your input will help them provide more relevant and trustworthy resources to better help you talk to your children about drugs and alcohol.

If you decide to participate in the survey, you will be asked to give us your feedback about the layout, design and content of the portal. The survey will take between 20 to 30 minutes and for participating, you’ll receive a $20 Prezzee gift voucher!

To access the survey, please click on the link below:

https://positivechoices.org.au/questionnaire/2024/site-evaluation

If you have any questions about the survey, please contact the researchers on [email protected]

Details:
Supporting someone with cancer can be challenging, and there is a growing awareness that carers need support and information to assist them in this role. This study aims to understand the information, and practical and support people who speak English as a second language who are caring for someone with cancer. Carers from non-English speaking backgrounds may feel that there is little information or support specific to them.

The study has been approved by Deakin University’s Human Research Ethics Committee. If you have any concerns regarding how this study is being conducted, you can contact them at [email protected].

We are inviting people to complete a paid online survey and/or focus groups if they meet the following criteria:

• Speak one of the following languages: Mandarin/Cantonese Arabic, Vietnamese or Punjabi
• Reside in Australia
• Aged 18+ years
• You have cared for or supported someone with cancer over the past 5 years (support can involve things like driving to medical appointments, helping with chores around the house, providing information, helping with medications etc)
• The person with cancer was aged 15 years or more when they were diagnosed.

Requested by:
The LOTE Agency, on behalf of Deakin University

Closing date:
30 January 2025

To apply:
Click here to sign up

Carers Can Ask is a resource for carers (family members and support people of those requiring treatment services) and clinicians to assist discussion about treatment, discharge planning and post discharge support.

The aim of the resource is to support carers to have an informed conversation with a service about treatment, discharge planning and post discharge support.  The resource also provides a guide to services and important information to convey to carers to enable them to provide ongoing care and support.

The CCA has been around for over a decade, has recently been updated and is ready for use.

Are you a person living with MS, or do you care for someone who does? Have you had experiences with the National Disability Insurance Scheme (NDIS) that you would like to share?

A research team at Menzies Institute for Medical Research is conducting a study exploring how Australians living with MS are accessing the NDIS. What works? What doesn’t work? What is difficult about applying for, or managing a plan? Are there ways the NDIS has impacted your life that you didn’t expect?

The research involves an interview of around 45-60 minutes (either in person or online). If you’re interested in learning more, please email Rebecca Banham at [email protected].

People living with cancer are being invited to participate in a cancer trial of a different kind – one that focuses on emotional wellbeing rather than clinical intervention.  The FOCUSau program is an online initiative of the University of Melbourne and St Vincent’s Hospital and is aimed at people with advanced or recurrent cancer, and notably, the individual’s immediate family carer.   It aims to improve emotional wellbeing and quality of life whilst offering coping strategies, future planning advice and symptom management.

You can take part in the study if you:

• Have advanced cancer (cancer that has progressed or returned)
• Are 18 years or older
• Have a support person involved in your care (family member or close friend) who is willing to take part in the study with you
• Have regular access to a computer or tablet with an internet connection
• Can read and understand English

Register here.

The University of Queensland is seeking Aboriginal and/or Torres Strait Islander representatives, who are ex-serving ADF members with experience of suicidality (either their own or others) or who have experience having cared for an ex-serving ADF member with a history of suicidality.

Consultations are held online and are an hour in length. There are also in-person meetings in Brisbane, if you are available.

Participation is paid.

For more visit this DVASUIC Google site.

Details:
The Health Care Consumers’ Association (HCCA), in partnership with Sydney Health Literacy Lab, is researching how we can help people who are prescribed anticoagulant tablets (blood thinning medication) for atrial fibrillation (irregular heartbeat). Your experiences and opinions could make a difference for others.

Who can participate:
Anyone who is based in Australia, over 18 years of age, an adult prescribed anticoagulants tablets for atrial fibrillation or a carer of someone prescribed anticoagulant tablets for atrial fibrillation

To sign up:

• Fill in your details here: register for anticoagulants consumer interviews, or
• Call HCCA on (02) 6230 7800

Participants will receive a gift voucher in recognition of their valuable time and contribution.

Details:
Approximately 90% of people living with dementia present with symptoms including agitation, irritability, and depression at some stage.

Our mission is to create an evidence-based eHealth solution that draws on the unique therapeutic properties of music to improve the lives of people living with dementia and their carers.

Requested by:
MATCH

Closing date:
Not specified

Find out more:
Click here

Details:
This survey is for young people with disability and parents/caregivers of children and young people with disability. We would like to know your thoughts about foundational supports and how you think they may impact on you.

This survey should take 10 to 15 minutes to complete.

Requested by:
Children and Young People with Disability Australia (CYDA) is the national representative organisation for children and young people with disability aged 0 – 25years, their parents and caregivers.

Closing date:
Not specified

Find out more:
Click here

Details:
Sign the petition and help us guarantee super for Australia’s unpaid carers.

Requested by:
Carers Australia and Are Media

Closing date:
Not specified

Find out more:
Click here

Details:
Seeking research participants between the ages of 18-30 years old. Participants would be required to have a sibling with a disability that was present during childhood, who they lived with in the family home whilst growing up. The sibling must currently be eligible for and accessing NDIS.

Requested by:
Jennifer Butler – Honours Psychology Student at Charles Sturt University

Closing date:
Not specified

To apply:
Please email [email protected]

Details:
We are currently seeking siblings who:

• Have a sibling with a neurodevelopmental condition (for example, Down syndrome, autism, ADHD, intellectual disability, etc.)
• Are aged 16-30 years old, and
• Are currently living, or have previously lived, in a regional or remote area of Australia

Requested by:
Honours Psychology Students at Curtin University

Closing date:
Not specified

To apply:
Click here to complete the questionnaire

Details:
The National Redress Scheme is for people who experienced child sexual abuse when they were in an institution. This could be a school, church or place of worship, mission, orphanage, foster care, hospital, detention centre or a sporting club. Redress can include a payment, counselling, and/or a direct personal response from the institution acknowledging and apologising for what happened.

Professionals from health, legal, social or community services, who have contact with people with disability, are in a strong position to refer people to the National Redress Scheme or provide basic information about what it offers. These professionals are often the first people that someone may talk to about their experience of sexual abuse.

Requested by:
Australian Government National Redress Scheme

Closing date:
Applications can be made any time before 30 June 2027

To apply:
Click here to find out more

Details:
Hummingbird Insight are currently conducting paid market research for a healthcare company about the management of incontinence and the incontinence products available. They are hoping to include carers of people aged 12-65 years who have incontinence to better understand the experience and needs of this group. Participation involves logging in to the online community for 20-30 minutes per day over 7 days – at a time of day that works for the respondent.

Requested by:
Hummingbird Insight – an Australian market research company who conduct market research exclusively within the health care industry, usually with health care providers and sometimes with their patients.

Closing date:
None specified

To apply:
Email Mary-Ann from Hummingbird Insight

Details:
Moving from home into residential aged care is a vulnerable time for older people. Researchers at Better Place Australia are conducting interviews with family members of older people who made the move in the last 2-6 months prior. The interview will take approximately 45-minutes and will be informal. The interview will be held online or over the phone.

Requested by:
Better Place Australia supports people through services including family counselling, supports for older people, mental health and mediation.

Closing date:
None specified

To apply:
Email the research team at Better Place Australia

Details:
Do you often manage medicines for a person living with dementia? We are inviting carers of people with dementia to participate in semi-structured interviews to collect their feedback on whether a new medication management resource provided at hospital discharge is acceptable to carers and people with dementia. The semi-structured interview will involve a short survey and then a discussion with a member of the research team.

To be eligible participants must be:

• a carer of a person living with dementia who is taking a medication;
• responsible for managing the medications of the person living with dementia;
• caring for a person who has had at least one discharge from the hospital to the home or a residential aged care facility; and
• aged 18 years and over

Requested by:
Research team in the Sydney Pharmacy School at the University of Sydney

Closing date:
None specified

To apply:
Email the research team or phone 02 9036 7070