Researchers from the Australian Institute of Family Studies (AIFS) are calling on LGBTIQA+ communities to help them investigate abuse and mistreatment of older LGBTIQA+ people. This research will help Government to better understand the types of abuse that older LGBTIQA+ people experience, the characteristics of those who experience and engage in this abuse, the impact on older LGBTIQA+ people, and their help-seeking behaviours.

 How can you get involved?

Online anonymous survey. All adults aged 18+ who identify as an LGBTIQA+ person are eligible to participate. We want to understand the views, experiences and awareness about elder abuse from all people in LGBTIQA+ communities. Survey link here > Survey and Participant Information Sheet

Survey closes at the end of the month.

Carers Can Ask is a resource for carers (family members and support people of those requiring treatment services) and clinicians to assist discussion about treatment, discharge planning and post discharge support.

The aim of the resource is to support carers to have an informed conversation with a service about treatment, discharge planning and post discharge support.  The resource also provides a guide to services and important information to convey to carers to enable them to provide ongoing care and support.

The CCA has been around for over a decade, has recently been updated and is ready for use.

Are you a person living with MS, or do you care for someone who does? Have you had experiences with the National Disability Insurance Scheme (NDIS) that you would like to share?

A research team at Menzies Institute for Medical Research is conducting a study exploring how Australians living with MS are accessing the NDIS. What works? What doesn’t work? What is difficult about applying for, or managing a plan? Are there ways the NDIS has impacted your life that you didn’t expect?

The research involves an interview of around 45-60 minutes (either in person or online). If you’re interested in learning more, please email Rebecca Banham at [email protected].

People living with cancer are being invited to participate in a cancer trial of a different kind – one that focuses on emotional wellbeing rather than clinical intervention.  The FOCUSau program is an online initiative of the University of Melbourne and St Vincent’s Hospital and is aimed at people with advanced or recurrent cancer, and notably, the individual’s immediate family carer.   It aims to improve emotional wellbeing and quality of life whilst offering coping strategies, future planning advice and symptom management.

You can take part in the study if you:

• Have advanced cancer (cancer that has progressed or returned)
• Are 18 years or older
• Have a support person involved in your care (family member or close friend) who is willing to take part in the study with you
• Have regular access to a computer or tablet with an internet connection
• Can read and understand English

Register here.

The University of Queensland is seeking Aboriginal and/or Torres Strait Islander representatives, who are ex-serving ADF members with experience of suicidality (either their own or others) or who have experience having cared for an ex-serving ADF member with a history of suicidality.

Consultations are held online and are an hour in length. There are also in-person meetings in Brisbane, if you are available.

Participation is paid.

For more visit this DVASUIC Google site.

Details:
The Health Care Consumers’ Association (HCCA), in partnership with Sydney Health Literacy Lab, is researching how we can help people who are prescribed anticoagulant tablets (blood thinning medication) for atrial fibrillation (irregular heartbeat). Your experiences and opinions could make a difference for others.

Who can participate:
Anyone who is based in Australia, over 18 years of age, an adult prescribed anticoagulants tablets for atrial fibrillation or a carer of someone prescribed anticoagulant tablets for atrial fibrillation

To sign up:

• Fill in your details here: register for anticoagulants consumer interviews, or
• Call HCCA on (02) 6230 7800

Participants will receive a gift voucher in recognition of their valuable time and contribution.

Details:
Approximately 90% of people living with dementia present with symptoms including agitation, irritability, and depression at some stage.

Our mission is to create an evidence-based eHealth solution that draws on the unique therapeutic properties of music to improve the lives of people living with dementia and their carers.

Requested by:
MATCH

Closing date:
Not specified

Find out more:
Click here

Details:
This survey is for young people with disability and parents/caregivers of children and young people with disability. We would like to know your thoughts about foundational supports and how you think they may impact on you.

This survey should take 10 to 15 minutes to complete.

Requested by:
Children and Young People with Disability Australia (CYDA) is the national representative organisation for children and young people with disability aged 0 – 25years, their parents and caregivers.

Closing date:
Not specified

Find out more:
Click here

Details:
The study invites anyone (aged 16 and over) with experience supporting someone with mental ill-health, to share what matters to them in mental health research. Our aim is to understand the mental health priorities of people with lived-experience, to ensure that our research is in alignment with their needs and interests.

Requested by:
The ALIVE National Centre for Mental Health Research Translation

Closing date:
Not specified

Find out more:
Click here

Details:
Sign the petition and help us guarantee super for Australia’s unpaid carers.

Requested by:
Carers Australia and Are Media

Closing date:
Not specified

Find out more:
Click here

Details:
Seeking research participants between the ages of 18-30 years old. Participants would be required to have a sibling with a disability that was present during childhood, who they lived with in the family home whilst growing up. The sibling must currently be eligible for and accessing NDIS.

Requested by:
Jennifer Butler – Honours Psychology Student at Charles Sturt University

Closing date:
Not specified

To apply:
Please email [email protected]

Details:
We are currently seeking siblings who:

• Have a sibling with a neurodevelopmental condition (for example, Down syndrome, autism, ADHD, intellectual disability, etc.)
• Are aged 16-30 years old, and
• Are currently living, or have previously lived, in a regional or remote area of Australia

Requested by:
Honours Psychology Students at Curtin University

Closing date:
Not specified

To apply:
Click here to complete the questionnaire

Details:
C-STAM stands for Computerised-Sydney Test of Activities of Daily living in Memory disorders. C-STAM is a computerised assessment measuring everyday functional ability in older people with and without dementia. We are looking for study participants to help us test the C-STAM and you will be reimbursed for your time. You will be eligible for the study if you are:

• Aged 60 years or above
• Living in Sydney
• Able to understand, read and write in English without an interpreter
• Have someone who knows you well who will participate in a brief phone interview and complete a few short questionnaires

Requested by:
The C-STAM research team at the University of New South Wales

Closing date:
Not specified

To apply:
Click here to sign up

Details:
The National Redress Scheme is for people who experienced child sexual abuse when they were in an institution. This could be a school, church or place of worship, mission, orphanage, foster care, hospital, detention centre or a sporting club. Redress can include a payment, counselling, and/or a direct personal response from the institution acknowledging and apologising for what happened.

Professionals from health, legal, social or community services, who have contact with people with disability, are in a strong position to refer people to the National Redress Scheme or provide basic information about what it offers. These professionals are often the first people that someone may talk to about their experience of sexual abuse.

Requested by:
Australian Government National Redress Scheme

Closing date:
Applications can be made any time before 30 June 2027

To apply:
Click here to find out more

Details:
Hummingbird Insight are currently conducting paid market research for a healthcare company about the management of incontinence and the incontinence products available. They are hoping to include carers of people aged 12-65 years who have incontinence to better understand the experience and needs of this group. Participation involves logging in to the online community for 20-30 minutes per day over 7 days – at a time of day that works for the respondent.

Requested by:
Hummingbird Insight – an Australian market research company who conduct market research exclusively within the health care industry, usually with health care providers and sometimes with their patients.

Closing date:
None specified

To apply:
Email Mary-Ann from Hummingbird Insight

Details:
Moving from home into residential aged care is a vulnerable time for older people. Researchers at Better Place Australia are conducting interviews with family members of older people who made the move in the last 2-6 months prior. The interview will take approximately 45-minutes and will be informal. The interview will be held online or over the phone.

Requested by:
Better Place Australia supports people through services including family counselling, supports for older people, mental health and mediation.

Closing date:
None specified

To apply:
Email the research team at Better Place Australia

Details:
Do you often manage medicines for a person living with dementia? We are inviting carers of people with dementia to participate in semi-structured interviews to collect their feedback on whether a new medication management resource provided at hospital discharge is acceptable to carers and people with dementia. The semi-structured interview will involve a short survey and then a discussion with a member of the research team.

To be eligible participants must be:

• a carer of a person living with dementia who is taking a medication;
• responsible for managing the medications of the person living with dementia;
• caring for a person who has had at least one discharge from the hospital to the home or a residential aged care facility; and
• aged 18 years and over

Requested by:
Research team in the Sydney Pharmacy School at the University of Sydney

Closing date:
None specified

To apply:
Email the research team or phone 02 9036 7070